Thursday, June 19, 2008

Experience with Cavilon - the politics

I need to be careful, as our NHS have recently refused to continue cancer treatment to patients who dare to supplement their inadequate NHS treatment with privately funded treatment. A government mantra - we must all be treated equally.....we cannot spend our "after tax" money to enhance our lives! Even worse, the government use my taxes to bribe Scottish folk to quit smoking!

It isn't as though the NHS treatment was perfect, these posts question whether radiotherapy and chemotherapy do more harm than good against cancers such as Jan's. So we need lateral thinking, and patient involvement in finding new cures be they medical or diet based. An NHS doctor's blog on this issue is here.

Jan is treated in Hertfordshire, one of the worst three counties in the UK for breast cancer survival. So life is not fair anyway. Scottish and English NHS treatments differ, is that fair? Will they insist all patients eat the same food? Can Jan please be enroled on the NHS free dark chocolate trial? One lady we know gets free dark chocolate that would cost me nearly £2 a day, why not us?

In Jan's case we are not funding a drug, just privately funding and trialling Cavilon, a fairly cheap plastic film. In my view we are providing the NHS and country a service, and should not be "condemned". We have openly shared this knowledge with the NHS hospital, they have had free access to the results of this one patient trial as Jan is treated by them. I have provided at no cost to the NHS and advice via this blog to any other cancer sufferer
  • Google research to find the product and details of its use
  • Purchased product at my expense
  • Provided nursing support to apply and manage product
  • Document results here
  • Saved the NHS any cost in providing cream and nursing care for skin damage as none was needed, the Cavilon was effective in Jan's case.
It reduced the burden on the NHS. If the government continue to persecute those who supplement their treatment we risk those people merely doing such things in secret. We could have applied Cavilon in secret, it does not show at all if washed off and re-applied every third day, but the NHS would not have had the opportunity to see a trial of an effective product.

Further details are in earlier posts, please search "Cavilon" in the blog if needed. I have no vested interest or association with 3M, the manufacturers of Cavilon.

No comments: